r/FinasterideSyndrome

Be agreeable (even when you disagree).

Be empathetic. PFS affects people to very different degrees. Experiences will differ from your own.

No ad hominem attacks.

Don’t post anything that could be considered obscene, offensive, abusive, bigoted, hate speech, divisive or inflammatory.

Do not imply other members are to blame for the persistence of drug-induced health problems.

Don’t harass anyone, impersonate people, or expose private information.

No theories or unsubstantiated clinical speculation.

Do not make declarative statements regarding what PFS “is” or assert things regarding scientific concepts or findings without significant and specific evidence.

Do not present your thoughts in a way that could be taken as fact or medical advice.

This also applies to AI-generated responses.

Do not prescribe treatments or quick fixes. Describe don't prescribe.

Do not recommend treatments or encourage members to pursue self-medication, directly or through rhetoric. Significant further harm has been reported from following users’ therapy suggestions. This also applies to AI-generated responses.

Patients are welcome to share their experiences regarding their individual situation.

Wait 3 months before posting.

We understand that the side effects of finasteride can be very distressing, especially since many of the symptoms are not listed in the product leaflet. However, these side effects are so common that we ask that you wait at least 3 months before posting.

Although somewhat arbitrary, patient self-reports indicate some consumers may experience on-drug side effects for up to 3 months before they resolve. Symptoms experienced during this timeframe should not be considered Post-Finasteride Syndrome.

No soliciting.

Users may under no circumstances solicit funds or direct users to projects external to those explicitly endorsed by the moderators of this sub-reddit.

No recruiting.

Recruitment of users to other groups/websites/patient organisations is not allowed. Doctors, patients and family members have concerns over the safety and potential monetisation of vulnerable patients.

Please do not link to external sites or forums even it appears easier to point to information hosted elsewhere. This also ensures that information is not subject to loss following the closure of external sites and services.

This is not a hairloss forum.

Please go to r/tressless to discuss your hair loss and treatment strategies. That community is more active than this one, and better equipped to handle your questions. This forum is dedicated to discussion about PFS only.

Don't undermine PFSN's goals

PFS Network is now a charity, and our urgent concern is progressing scientific understanding of the driving pathomechanism of PFS so a safe and effective treatment can be identified as soon as possible. Please do not use the forum to undermine these goals. Please send any questions privately to a mod.

Low karma and/or new accounts subject to review

To maintain the quality of discussion and prevent spam, repeat rule breaking, and sock puppeting, we automatically filter and manually review participation from accounts with very low karma or those created recently.